We are the oldest registered charity in England/Wales as well as the oldest in Scotland who are here to support those who are affected with Alpha-1 Antitrypsin Deficiency. Not only do we support those affected, their families and friends, we also bring awareness of the condition to medical professionals and the general public. Our charity is run by non-paid volunteers who are either affected by Alpha-1 or have a family member who is. We have a real passion for the charity and for supporting people who are affected, their families and friends.
We produce booklets which people can view and download digitally and even request that a set be sent to them in the post for free (UK residents only). Click here to go to our booklet area on our main website.
While we have a website (www.alpha1.uk), we created this website so that people can see news about Alpha-1 from around the world in a quick and easy way.
If you would like to ask us a question about Alpha-1, you can use the 'Contact Us' form.
Alpha-1 Awareness is a charity founded and run by volunteers to help bring awareness of AATD as well as give support to those
Alan Wooler, David Lomas & Emma Wooler On Monday 3rd February 2020, Alan and Emma Wooler of Alpha-1 Awareness went to UCL
We at Alpha-1 Awareness have some wonderful news that we would like to share with you. Internal Promotion Glyn Cockaday joined our charity
Alpha-1 in the Press
RICHLAND, WA- The Wishing Star Foundation is a non-profit based out of Spokane that grants the wishes of children ages 3-21 with terminal, life threatening
Researchers in Ireland are hoping to add to the growing list of drug candidates for the treatment of patients with severe Covid-19 infection.
MOUNT PLEASANT (WJRT) (4/21/2020) – At 37, Paul DeWyse was diagnosed with a rare disease called alpha 1 antitrypsin deficiency. “Basically that is your
Other Alpha-1 Group’s News
AlphaNet is pleased to announce the appointment of Dell Witcher to the board of directors, effective May 14, 2020. “Dell’s expertise and involvement
Two dozen CSL Behring employees are pedaling the highways and byways of Cape Cod, Massachusetts, this weekend as part of the Alpha 1
Researchers from the Center for Regenerative Medicine (CReM) have assembled the largest repository of patient derived stem cells (iPSCs) from patients with alpha-1
(Boston)–Using a combination of pluripotent stem cells (cells that can potentially produce any cell or tissue type) and machine learning (artificial intelligence that
Treatment Research & Trials
First subject dosed with ZF874, a potential disease-modifying treatment for alpha-1-antitrypsin deficiency
Z Factor Ltd, a Cambridge-based drug development company spun out of the University of Cambridge, announced that the first human volunteer was dosed
RNA interference (RNAi), sometimes called gene silencing, is an approach to therapeutics in certain diseases that are caused by the production of abnormal
Dicerna™ Receives Orphan Drug Designation From European Commission for DCR-A1AT for Treatment of Congenital Alpha-1 Antitrypsin Deficiency
LEXINGTON, Mass.–(BUSINESS WIRE)–Dec. 17, 2019– Dicerna™ Pharmaceuticals, Inc. (Nasdaq: DRNA) (the “Company” or “Dicerna”), a leading developer of investigational ribonucleic acid interference (RNAi) therapeutics, today announced
Danish Medicines Council Grants Approval for CSL Behring’s Respreeza as Standard Treatment for Severe Alpha-1 Antitrypsin Deficiency Patients
HATTERSHEIM AM MAIN, Germany, Jan. 24, 2020 /PRNewswire/ — Global biotherapeutics leader CSL Behring today announced that the Danish Medicines Council has published its final decision,
The Alpha-1 Foundation received the following communication update from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for the treatment of
FLINT, Mich., Aug. 8, 2019 /PRNewswire/ — Diplomat Pharmacy, Inc. (NYSE: DPLO), is pleased to announce an exclusive agreement between Diplomat and Allergy Partners, P.A., to manage in-office
Help and Advice
Reducing air pollution improves people’s health very quickly, reports a paper from the Forum of International Respiratory Societies (FIRS). Air pollution is when
Michigan becomes the first state to ban flavored e-cigarettes for minors starting today. Governor Gretchen Whitmer has been making a push to get nicotine out
The first reported death tied to vaping in the United States was confirmed on Friday by officials from the Illinois Department of Public Health.