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Can you help name the new Baby Bears?
Exciting news! Alphie and Tripsy are delighted to welcome a new sister and brother to their Alpha family. But they now need
New Board members to our charity
Alpha-1 Awareness is a charity founded and run by volunteers to help bring awareness of AATD as well as give support to those
Alpha-1 Awareness donate £10,000 to the research of a cure
Alan Wooler, David Lomas & Emma Wooler On Monday 3rd February 2020, Alan and Emma Wooler of Alpha-1 Awareness went to UCL
New blood test predicts which COVID-19 patients will develop severe infection
18th October 2020 Professor Gerry McElvaney (left), the study’s senior author and a consultant in Beaumont Hospital, and Professor Ger Curley (right) stand
BBC documentary Surgeons: At the edge of life will show AATD patient receive a double lung transplant.
On Tuesday 20 October, the BBC documentary Surgeons: At the edge of life will show David (pictured below) receiving a double lung transplant.
Grifols begins phase 3 testing for COVID-19 treatment
RESEARCH TRIANGLE PARK — Grifols, a global biotherapeutics company, has begun Phase 3 clinical trials in patients with COVID-19 with its therapeutic manufactured in
NEW IRISH ALPHA-1 RESEARCH IN 2020
Irish Alpha-1 research published last month in “Thorax”, one of the world’s leading respiratory medicine journals, highlights the crucial importance of patient registries for
AlphaNet Announces New Appointment to the Board of Directors
AlphaNet is pleased to announce the appointment of Dell Witcher to the board of directors, effective May 14, 2020. “Dell’s expertise and involvement
Research Priorities in Alpha-1 antitrypsin deficiency (AATD)
We need your help! Being led by the European Alpha-1 Research Collaboration (EARCO), a survey has been created to give us all input
New blood test predicts which COVID-19 patients will develop severe infection
18th October 2020 Professor Gerry McElvaney (left), the study’s senior author and a consultant in Beaumont Hospital, and Professor Ger Curley (right) stand
Largest Source of AATD Stem Cells Collected
Researchers from the Center for Regenerative Medicine (CReM) have assembled the largest repository of patient derived stem cells (iPSCs) from patients with alpha-1
Researchers build a better lung model
(Boston)–Using a combination of pluripotent stem cells (cells that can potentially produce any cell or tissue type) and machine learning (artificial intelligence that
Vertex Abandons VX-814 Program for Treating Rare Liver Disease
15th October 2020 Vertex Pharmaceuticals announced that based on early data of its Phase II trial of VX-814 in Alpha-1 antitrypsin deficiency (AATD), it is
Healthy PiMZ Alphas required for a new trial
If you are a healthy PiMZ then please consider taking part in this exciting Alpha-1 clinical trial. Please contact HMR direct using the
First subject dosed with ZF874, a potential disease-modifying treatment for alpha-1-antitrypsin deficiency
Z Factor Ltd, a Cambridge-based drug development company spun out of the University of Cambridge, announced that the first human volunteer was dosed
Danish Medicines Council Grants Approval for CSL Behring’s Respreeza as Standard Treatment for Severe Alpha-1 Antitrypsin Deficiency Patients
HATTERSHEIM AM MAIN, Germany, Jan. 24, 2020 /PRNewswire/ — Global biotherapeutics leader CSL Behring today announced that the Danish Medicines Council has published its final decision,
CSL Behring lift their precautionary distribution hold on ZEMAIRA®
The Alpha-1 Foundation received the following communication update from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for the treatment of
Diplomat signs exclusive practice-based infusion agreement with Allergy Partners
FLINT, Mich., Aug. 8, 2019 /PRNewswire/ — Diplomat Pharmacy, Inc. (NYSE: DPLO), is pleased to announce an exclusive agreement between Diplomat and Allergy Partners, P.A., to manage in-office
European Lung Foundation advise on planning a flight
ELF (European Lung Foundation) has produced a poster to help make people with lung conditions aware of the steps they should take when
Health Benefits of Air Pollution Reduction
Reducing air pollution improves people’s health very quickly, reports a paper from the Forum of International Respiratory Societies (FIRS). Air pollution is when
Michigan becomes first state to ban flavored e-cigarettes
Michigan becomes the first state to ban flavored e-cigarettes for minors starting today. Governor Gretchen Whitmer has been making a push to get nicotine out
First U.S. death caused by vaping confirmed in Illinois
The first reported death tied to vaping in the United States was confirmed on Friday by officials from the Illinois Department of Public Health.