We are the oldest registered charity in England/Wales as well as the oldest in Scotland who are here to support those who are affected with Alpha-1 Antitrypsin Deficiency. Not only do we support those affected, their families and friends, we also bring awareness of the condition to medical professionals and the general public. Our charity is run by non-paid volunteers who are either affected by Alpha-1 or have a family member who is. We have a real passion for the charity and for supporting people who are affected, their families and friends.
We produce booklets which people can view and download digitally and even request that a set be sent to them in the post for free (UK residents only). Click here to go to our booklet area on our main website.
While we have a website (www.alpha1.uk), we created this website so that people can see news about Alpha-1 from around the world in a quick and easy way.
If you would like to ask us a question about Alpha-1, you can use the 'Contact Us' form.
We at Alpha-1 Awareness have some wonderful news that we would like to share with you. Internal Promotion Glyn Cockaday joined our charity
It is with great sadness that we have to write about the sad passing of Dawn Haywood- Jones. Dawn along with 3 other
Alpha-1 Awareness is dedicated to contributing a minimum of 10% of its funds raised towards research to find a cure for this condition.
Alpha-1 in the Press
Culver High School’s head football coach, Shea Little, has led the Bulldogs to the best record of any high school football team on
Woman in need of a double lung transplant says she’s running out of time and blames a change in American policy
SHAPLEIGH (WGME) — A woman in need of a double lung transplant says she’s running out of time and blames a change in
More than 30 years ago, a little girl from Windham in need of a liver transplant captured the hearts of Mainers. In the
Other Alpha-1 Group’s News
Two dozen CSL Behring employees are pedaling the highways and byways of Cape Cod, Massachusetts, this weekend as part of the Alpha 1
The Alpha-1 Foundation earned the 2019 Platinum Seal of Transparency, the highest level of recognition offered by GuideStar, the world’s largest database and
4th International Research Conference on Alpha-1 Antitrypsin and 7th Alpha-1 Global Patient Congress
The Alpha-1 Foundation hosted the 4th International Research Conference and the 7th Global Patient Congress, April 3-6, 2019, in Dubrovnik, Croatia. The Patient
Grifols (MCE: GRF, MCE: GRF.P NASDAQ: GRFS), a leading global producer of plasma-derived medicines and a leader in the development of innovative diagnostic
Shirts with smart technology could be used in place of traditional laboratory equipment to measure lung function, and prove to be particularly useful
Ronald G. Crystal, MD, is chair of the department of genetic medicine at Weill Cornell Medical College in New York, where he has
Treatment Research & Trials
Vertex may have misjudged the data that regulators will want to see before approving one of the company’s most prized pipeline drugs. On
Inhibrx Announces Enrollment of First Patient in Phase 1 Study of INBRX-101, a Modified Recombinant Human AAT-Fc Fusion Protein
SAN DIEGO, September 4, 2019 /PRNewswire/ — Inhibrx, Inc. (Inhibrx), a clinical-stage biotechnology company focused on developing a broad pipeline of novel biologic therapeutic
REHOVOT, Israel, Sept. 03, 2019 (GLOBE NEWSWIRE) — Kamada Ltd. (NASDAQ and TASE: KMDA), a plasma-derived protein therapeutics company, announced today the extension of its
The Alpha-1 Foundation received the following communication update from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for the treatment of
FLINT, Mich., Aug. 8, 2019 /PRNewswire/ — Diplomat Pharmacy, Inc. (NYSE: DPLO), is pleased to announce an exclusive agreement between Diplomat and Allergy Partners, P.A., to manage in-office
The Alpha-1 Foundation was informed by CSL Behring that a Voluntary Biological Product Recall is being initiated for 4 lots of Zemaira®, their
Help and Advice
Michigan becomes the first state to ban flavored e-cigarettes for minors starting today. Governor Gretchen Whitmer has been making a push to get nicotine out
The first reported death tied to vaping in the United States was confirmed on Friday by officials from the Illinois Department of Public Health.
Anxiety and depression in patients with alpha-1 antitrypsin deficiency: current insights and impact on quality of life
Division of Pulmonary and Critical Care Medicine, Medical University of South Carolina, Charleston, SC, USA Abstract: Chronic physical illness is associated with significant vulnerability