18th October 2020  Professor Gerry McElvaney (left), the study’s senior author and a consultant in Beaumont Hospital, and Professor Ger Curley (right) stand in front of the RCSI Education and Research Centre in Beaumont Hospital, Dublin.   Scientists have developed, for the first time, a score that can accurately predictContinue Reading

  RESEARCH TRIANGLE PARK — Grifols, a global biotherapeutics company, has begun Phase 3 clinical trials in patients with COVID-19 with its therapeutic manufactured in Clayton. The Spanish company is testing its hyperimmune globulin for its safety, effectiveness and tolerability as a weapon to combat SARS-CoV-2, the virus that causes COVID-19. SinceContinue Reading

Irish Alpha-1 research published last month in “Thorax”, one of the world’s leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions. Patient registries are confidential collections of data that store demographic (e.g. age, sex, height, weight) and medical information on individuals with various health conditions. TheContinue Reading

Exciting news!   Alphie and Tripsy are delighted to welcome a new sister and brother to their Alpha family.  But they now need your help. We need names for our new mini bears.  Just fill out the form on our web site with up to 5 names each for ourContinue Reading

Z Factor Ltd, a Cambridge-based drug development company spun out of the University of Cambridge, announced that the first human volunteer was dosed today with ZF874, its novel treatment for alpha-1-antitrypsin deficiency (AATD). AATD is a common genetic disorder, affecting around in 1 in 2000 people in Western countries, whereContinue Reading

RICHLAND, WA- The Wishing Star Foundation is a non-profit based out of Spokane that grants the wishes of children ages 3-21 with terminal, life threatening or medically complicated conditions. Friday the non-profit granted the wish of a young Richland girl named Oaklee McBride. Oaklee has Alpha-1 Antitrypsin Deficiency an inherited condition thatContinue Reading