Alpha-1 Awareness is a charity founded and run by volunteers to help bring awareness of AATD as well as give support to those affected, their families, friends and carers. We can’t do this alone, and we are so thankful to those who help in our Facebook Group respond to people’sContinue Reading
Alan Wooler, David Lomas & Emma Wooler On Monday 3rd February 2020, Alan and Emma Wooler of Alpha-1 Awareness went to UCL (University College London) to see Professor David Lomas, and presented him with a cheque for £10,000 to go towards his research of a cure for Alpha-1. Continue Reading
We at Alpha-1 Awareness have some wonderful news that we would like to share with you. Internal Promotion Glyn Cockaday joined our charity Board 3 years ago as our Facebook Admin. Glyn not only excelled at this role, but started to help with many other internal projects and often tookContinue Reading
It is with great sadness that we have to write about the sad passing of Dawn Haywood- Jones. Dawn along with 3 other people started Alpha-1 Awareness in 2008 in the hope that they could reach out to fellow sufferers and to educate the medical profession on this Rarely knownContinue Reading
Alpha-1 Awareness is dedicated to contributing a minimum of 10% of its funds raised towards research to find a cure for this condition. In 2018, we went above and beyond this target, donating £25,000 to the patron of the Charity, Prof Lomas, Vice-Provost of Health at University College London (UCL).Continue Reading
On Monday 17th December we went to see Mereo BioPharma at their office in London. Mereo BioPharma have recently started dosing in their Phase 2 clinical trial for MPH-966 (alvelestat). The study will recruit in America, Canada, Europe and the UK. The plan is that people who are PiZZContinue Reading
On the 26th July 2018, Alan Wooler went to see some of the team at UCL who are doing the vital research into finding a cure for Alpha-1. Alistair Jagger who is a PhD student in Prof Lomas’ team was kind enough to show Alan around the labs and answerContinue Reading
On 8 July 2018, Alpha-1 Awareness hosted its 10 year Celebration Day, celebrating 10 years since the founding of the charity. World-renowned speakers were invited to share their knowledge on Alpha-1 Antitrypsin Deficiency, Professor David Lomas and Professor Nedim Hadzic, as well as those conquering the condition themselves, Karen Skålvoll.Continue Reading
EXCITING NEWS…. We have now launched the new Alphie Kids Club. The first club for children affected by Alpha-1 where they can come along and download colouring in pages, puzzles and become a member and receive our exclusive membership pack. So please click on the link and join your childrenContinue Reading
8th June 2018 Our charity is here to bring awareness of AATD and to support those affected. We are making a big difference and many people rely on our help. It is wonderful when other groups help to tell others who we are and what we do. In the latestContinue Reading
