On the 26th September 2021, our chairman Alan Wooler is to step down due to personal commitments. For those who are not aware, the majority of the Board of directors who run our charity also have day jobs.  Alan works in IT and has been with the same company forContinue Reading

We were pleased to announce back in August 2020 that the first person was dosed with ZF874, a potential treatment for alpha-1-antitrypsin deficiency.  Then on the 24th September we published the details for HMR who are running the trail on behalf of Z Factor, asking for PiMZ people to help. Continue Reading

Exciting news!   Alphie and Tripsy are delighted to welcome a new sister and brother to their Alpha family.  But they now need your help. We need names for our new mini bears.  Just fill out the form on our web site with up to 5 names each for ourContinue Reading

Alpha-1 Awareness is a charity founded and run by volunteers to help bring awareness of AATD as well as give support to those affected, their families, friends and carers.  We can’t do this alone, and we are so thankful to those who help in our Facebook Group respond to people’sContinue Reading

We at Alpha-1 Awareness have some wonderful news that we would like to share with you. Internal Promotion Glyn Cockaday joined our charity Board 3 years ago as our Facebook Admin.  Glyn not only excelled at this role, but started to help with many other internal projects and often tookContinue Reading

It is with great sadness that we have to write about the sad passing of Dawn Haywood- Jones. Dawn along with 3 other people started Alpha-1 Awareness in 2008 in the hope that they could reach out to fellow sufferers and to educate the medical profession on this Rarely knownContinue Reading

  On Monday 17th December we went to see Mereo BioPharma at their office in London. Mereo BioPharma have recently started dosing in their Phase 2 clinical trial for MPH-966 (alvelestat). The study will recruit in America, Canada, Europe and the UK. The plan is that people who are PiZZContinue Reading