Irish Alpha-1 research published last month in “Thorax”, one of the world’s leading respiratory medicine journals, highlights the crucial importance of patient registries for rare conditions. Patient registries are confidential collections of data that store demographic (e.g. age, sex, height, weight) and medical information on individuals with various health conditions. TheContinue Reading

The Alpha-1 Foundation hosted the 4th International Research Conference and the 7th Global Patient Congress, April 3-6, 2019, in Dubrovnik, Croatia. The Patient Congress was attended by 160 participants representing 32 countries. The Patient Congress began the evening of April 4th with a welcome reception and a joint dinner withContinue Reading

MIAMI and BOSTON, Jan. 31, 2018 /PRNewswire/ — The Alpha-1 Foundation celebrates the first granting of the John W. Walsh Translational Research Award in Alpha-1 Antitrypsin Deficiency, an honorable award named after John W. Walsh, co-founder of the Alpha-1 Foundation, a visionary man who dedicated his life’s work to finding a cure for Alpha-1 Antitrypsin DeficiencyContinue Reading